Bringing Aarskog families together
Michelle Erskine, Founder and Managing Director of The Aarskog Syndrome Foundation approached Clever Business Websites. The Aarskog Syndrome Foundation is a global alliance of people living with Aarskog Syndrome,a rare genetic disorder of the FDG1 gene that is linked to the X chromosome. Michelle was looking for a website that would raise awareness about the condition, but also a place to talk about events and news as well as providing a members area full of resources and a chat facility. Michelle was looking for a website that would not only offer information about the condition, but also a place to talk about events and news as well as providing a members area full of resources and a chat facility.
Patients living with Aarskog Syndrome come together through The Aarskog Foundation in a structured environment to create an Aarskog community and a voice through advocacy and exchange experiences. To this end we aim to unite, expand and put Aarskog Syndrome on the agenda of organisations and institutions both in the UK and across the world.
A platform for parents, carers and people with Aarskog Syndrome
Michelle worked closely with the team, explaining exactly what she was looking for in her website. From the design brief we were able to research a suitable members profile plug-in, that would provide all of the functionality that Michelle was looking for.Creating a platform for parents, carers and people with aarskog syndrome themselves was a key factor in the website’s requirements. The members area has been constructed in such a way that enables members to directly communicate with each other, offering personal support and information. The resources area provides important information about aarskog syndrome, useful links and resources that can be beneficial to those with aarskog syndrome, or carers of those with the condition.
A useful resource
The website went live a few months later, and Michelle is now looking at expanding the website to include more pages and information. Since its launch she has already adding a shop to the website, where you can purchase Team Aarskog t-shirts, with more items to be added over the coming months.Michelle has since extended the items available to purchase in the online shop, as well as continuing to add more important content to the site.